I simply want to say thank you for sharing your story. I found the blog you made in memory of your sweet baby girl, Karinne, when I googled the phrase "what is acrania". I also have a sweet baby girl. Her name is Luisa. She is 20 weeks (in gestation) old. And we just found out, on the same day that we found out that we were having a girl, that this sweet daughter of ours has a congenital defect called which has caused her to have acrania. We were, of course, devastated and so heartbroken. We have been blessed with two boys but were so looking forward to having a girl. Reading your blog helped me to have more peace about our situation, as well as giving me some positive ways to cope, and enjoy this precious time with my daughter. Thank you again and God bless.
We have emailed back and forth several times this week. And we have encouraged each other. Kat shared her new blog site with me - in honor of her sweet Luisa - and I would like to share it here. Here's a link to the post where she so kindly honored Karinne and I with her gracious words: Beauty for Ashes II
Please remember Kat, Luisa and their family in your prayers as they begin this very difficult journey.