School Girl charm

Friday, December 17, 2010

Karinne's Website Reaches Another Family in Need

I have been deeply blessed this week - and saddened as well - to find out how our website has been of great help to another family experiencing acrania.  On Monday, I received the following email:

Dear Mother of Karinne,

I simply want to say thank you for sharing your story. I found the blog you made in memory of your sweet baby girl, Karinne, when I googled the phrase "what is acrania".  I also have a sweet baby girl. Her name is Luisa.  She is 20 weeks (in gestation) old.  And we just found out, on the same day that we found out that we were having a girl, that this sweet daughter of ours has a congenital defect called Amniotic Band Syndrome which has caused her to have acrania.  We were, of course, devastated and so heartbroken.  We have been blessed with two boys but were so looking forward to having a girl. Reading your blog helped me to have more peace about our situation, as well as giving me some positive ways to cope, and enjoy this precious time with my daughter.  Thank you again and God bless.


My initial reaction upon reading this was MANY MANY tears.  Tears that this other family was going through this too.  And tears that one of my strongest desires and greatest prayers for this website had been answered - That a family given the diagnosis of acrania could type it into google, find Karinne's site, and be inspired encouraged and strenghtened for their own personal journey.  Thank you LORD for leading Kat to Karinne's site - and for leading her to contact me.   

We have emailed back and forth several times this week.  And we have encouraged each other.  Kat shared her new blog site with me - in honor of her sweet Luisa - and I would like to share it here.  Here's a link to the post where she so kindly honored Karinne and I with her gracious words:  Beauty for Ashes II

Please remember Kat, Luisa and their family in your prayers as they begin this very difficult journey. 


  1. Praying for this sweet family. How amazing that Karinne's story is being used to help another family. It helps to give purpose to your situation. I know the one thing we prayed with Eli is that God would use this situation to reach others for Him. You are doing a wonderful thing mama! Praying for your as you minister to this family as well.

  2. Praying for them as they embark on this journey of the unknown. Your blog is helping many, keep it up ((HUGS)).

  3. How beautiful! What an honor for Karinne!! And her mommy!


  4. Thank you Kara. This posting gave me much need warm fuzzies. I am too so, so grateful that I was led to your/Karinne's blog. Have a wonderful weekend.

  5. Beautiful....her life was not in are a brave and precious mama.

    Sending you love,

  6. That is awesome that this family found you and you guys can be a support system for eachother. Praying for this other family!

  7. I'm glad this family found you for support. This is one reason for our blogs-to help others!